Wednesday, March 21, 2012

I thought I would share this -

I am the mother to two beautiful preemie girls - One ( Taylor ) was born at 31 weeks and Addyson was born at 35 weeks.

"But Lord, I don't think she even believes in you."

God smiles. "No matter, I can fix that. This one is perfect.She has just the right amount of selfishness.

"The angel gasps, "Selfishness?! Is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she will never survive. Yes, here is a woman whom I will bless with a child less than perfect.

She doesn't know it yet, but she is to be envied.

She will never take for granted a spoken word.

She will never consider a step ordinary.

When her child says 'mama' for the first time, she will be witness to a miracle and know it.

I will permit her to see clearly the things I see ignorance, cruelty, prejudice and allow her to rise above them.

She will never be alone.


Often I feel alone in this journey with Taylor and I question why?! But I am envied because of Taylor's challenges people envy the strength it takes for us to overcome challenges.

Just thought I would share what an amazing God we all have!

Saturday, March 17, 2012

Sight Seeing.

As most of you know - Taylor is in need of a eye surgery that can potentially save her eye sight. She was born with a condition known as ROP - and the immense amount of oxygen that was given to her in the NICU only made it worse. We have been fighting harder than I have ever had to, to get Taylor this surgery. Our Insurance is refusing at this time to pay for the surgery so I have been really busy writing letters and mailing them out to see if one of the pro - bono surgeons can do the surgery... So for now we fight and wait.

xoxoxox

Wednesday, March 14, 2012

Taking Off.

Taylor continues to surprise me on a daily basis. Just last week she decided she needed to go potty like a big girl and is conquering the goal of potty training so well that even as a mom I have a doubt it will actually work.

In OT - taylor finally went down the slide on HER own... WHOA. Hold on a sec, My child the one who is terrified of the slide - went down?! Im sure Ms. Katie thinks that I am crazy when I look at her shocked. My child is cutting with scissors, building towers and climbing and jumping.... dont slow down Taylor!! Keep growing!!!

In speech - she is now telling stories. Speaking more than just two words at a time, and I can not be more proud of her!!! GO TAYLOR!

So off we go to speech this am just wanted to share some happy news with you all this am.